Something New

I was recently in Micheal's Craft Store and someone asked me for help because she could not reach something. Not because she was too short-I suffer the same "malady"myself-but because her arm would not cooperate.

We chatted a bit and she mentioned she had Fibro. I replied that I understood since I too had Fibro and some days were definitely better than others. The conversation was quick but she stated she did not have the horrible flairs she once did since her doctor prescribed Neurontin.
I had not heard of it so I brought it up at my next appointment with my RN. She was actually very positive about it and said she was going to recommend it for my insomnia. So we tried it. And I am finally sleeping better. I also have to say that while the exhaustion is not gone it is far better and so is my ability to deal with my pain. Again, it is not gone but it is better.

This is wonderful news and I am sharing in the hope that it will help someone else out there. My husband recently began taking it instead of his prescribed Ambien and finds he actually sleeps better and it is helping him deal with his arthritic pain as well.

I do so love serendipity! I am very grateful that I was where I was and that a stranger shared with me what helped her. It may or may not work for everyone but I am hopeful for the first time in a very long time.

I Make Mistakes

I make mistakes. Lots of them. Since my accident that resulted in a TBI and then fibro it means I make more than I ever did and I get so frustrated by it at times. One of the greatest mistakes is not admitting my limits-even to myself. I "forget" I am not the person that I was pre-accident/fibro and I push myself to do more, better, faster or "like I did before."

It was one of THOSE days

Today was one of THOSE days. Spring has finally sprung in NW CT. The air was dry with temps in the 70's and the sun was glorius. It was one of those top 10 days of the year; the kind of day I wait in anticipation for all winter long. I have been trying to be kind to myself the past couple of weeks. It should have been incredible.

Fibro Fact

Been sort of out of commission for a bit. I have a business and running that has been a struggle so I have not been keeping up here. I figure if anyone can understand that it is someone reading a Fibro blog.  :)

A llittle info for you or those who have a loved one with Fibro:

Don't Judge, Criticize or Feed Into the Ignorance

Happy Thought...

What's a Spoonie?

Spoon Theory

Spoon Theory is one that is used to explain just what it is that many people with chronic illness deal with on a daily basis. The infographic below explains it about the best and easiest way I have found. Anyone that can relate to this can call themselves a "Spoonie" in order to help others who understand the term relate to them.

I kind of use this myself but mostly with others who understand the term. To me it is about energy and my pool is kind of like a energy bank account that I spend from-if I deplete it then it's gone. If I go over my allotted spending then I have a deficit that I have to refill. 

My Fibro Symptoms

How fibro has reared it's ugly head...

Every case of fibromyalgia is different. One person may experience a whole array of symptoms that another does not. So far there have been over 200 of them linked to this illness and I have a feeling there will be more in time.

I actually feel like I am what is termed a "hypochondriac" by many people because I have so many symptoms that seem totally unrelated. The other issue is that they can come and go-one day I may have debilitating pain and the next it can be quite a bit less. Itching is another that seems to come and go and I cannot relate it to any other cause-I will have problems with deep itching that lasts for hours, it will subside then come back again for days or weeks then disappear for several months, only to start again.

Fibromyalgia

An Intro-so to speak 

Can you imagine going through your day with your back on fire while you still keep going and doing and taking care of all the regular things that you have to do in a normal day? I don't mean a slight burning sensation either. I mean you actually are ON FIRE. Instead of running or dousing yourself or stop, drop and rolling,  you just keep plugging along while that fire just keeps burning on and on and on.