Something New

I was recently in Micheal's Craft Store and someone asked me for help because she could not reach something. Not because she was too short-I suffer the same "malady"myself-but because her arm would not cooperate.

We chatted a bit and she mentioned she had Fibro. I replied that I understood since I too had Fibro and some days were definitely better than others. The conversation was quick but she stated she did not have the horrible flairs she once did since her doctor prescribed Neurontin.
I had not heard of it so I brought it up at my next appointment with my RN. She was actually very positive about it and said she was going to recommend it for my insomnia. So we tried it. And I am finally sleeping better. I also have to say that while the exhaustion is not gone it is far better and so is my ability to deal with my pain. Again, it is not gone but it is better.

This is wonderful news and I am sharing in the hope that it will help someone else out there. My husband recently began taking it instead of his prescribed Ambien and finds he actually sleeps better and it is helping him deal with his arthritic pain as well.

I do so love serendipity! I am very grateful that I was where I was and that a stranger shared with me what helped her. It may or may not work for everyone but I am hopeful for the first time in a very long time.

An Essential Oil Blend For Fibromyalgia & More

Fibromyalgia can kick you from here to the end of the block and back again. Boosting serotonin is one way to help deal with pain, sleeplessness, depression, gut motility, endocrine function and a slew of other issues faced by those of us who suffer from Fibro. 

Lately there is a lot of hype about essential oil usage, namely because of the marketing skills of a certain company whose name sounds a lot like Toe-Derra. I take personal issue with their tactics and even some or their recommendations. I won't get into them in any great detail here, however, I have always believed in the power of natural medicines and am happy to provide this information for a blend that works for some of my Fibro issues. I feel it is a good option for relief of some of my own issues and thought it might be appropriate for others.

Your mileage may vary of course-please do not take what information I am giving here as set in stone and certainly do not use it in place of your own physicians advice or prescription for your health. 

Fibromyalgia Awareness Day 2015

Yes. That is what today is-Not sure what else to say. I admit I feel like I should have a lot to say but I just don't. Maybe it just surprises me that there are people who are not aware. They must all be living under a rock or something I guess!

So here ya go-be aware-people have fibro and you need to know it! If not for your sake for the sake of those with this insidious dis-ease that impacts every facet of the lives of those that have it.

Share what you did for this oh so auspicious occasion below in the comments section and give me some ideas of what I should have come up with myself. :)

It was one of THOSE days

Today was one of THOSE days. Spring has finally sprung in NW CT. The air was dry with temps in the 70's and the sun was glorius. It was one of those top 10 days of the year; the kind of day I wait in anticipation for all winter long. I have been trying to be kind to myself the past couple of weeks. It should have been incredible.

Fibro Fact

Been sort of out of commission for a bit. I have a business and running that has been a struggle so I have not been keeping up here. I figure if anyone can understand that it is someone reading a Fibro blog.  :)

A llittle info for you or those who have a loved one with Fibro:

Don't Judge, Criticize or Feed Into the Ignorance

My Life In One Sentence...

Happy Thought...

How I "Caught" Fibromyalgia Part 2

Follow my blog with Bloglovin

And so the "saga" continues...


Where was I?

Oh yeah! The next event that was a big tipping point.

How I "Caught" Fibromyalgia

How it all started...

While fibro is not something you can contract from another person or persons there are links to it being hereditary. I believe my paternal grandmother, my mother and father all suffered from it but it was at a time long before anyone ever thought to diagnose this syndrome. 


My sister also had fibro. She was the first diagnosed person that I knew who suffered from it and it was that diagnosis that first brought my attention to this chronic condition. Because she had the illness I researched it, trying to find something that might help her. I recognized that I probably had a "touch of it" but did not want to admit that I was experiencing the same illness she had because it seemed to anger her that I would say such a thing. She told me I could not possibly have fibro because my symptoms were not completely the same as hers. Had she only known then what I know now, but she never will as she has passed on.

What's a Spoonie?

Spoon Theory

Spoon Theory is one that is used to explain just what it is that many people with chronic illness deal with on a daily basis. The infographic below explains it about the best and easiest way I have found. Anyone that can relate to this can call themselves a "Spoonie" in order to help others who understand the term relate to them.

I kind of use this myself but mostly with others who understand the term. To me it is about energy and my pool is kind of like a energy bank account that I spend from-if I deplete it then it's gone. If I go over my allotted spending then I have a deficit that I have to refill. 

Research finds nerve damage in patients with fibromyalgia

NEW YORK, Dec. 16, 2014 /PRNewswire

Therapath, LLC (www.therapath.com), a leader in neuropathology laboratory services, reports that new findings have revealed that patients diagnosed with fibromyalgia may also have a diagnosable small fiber neuropathy.

Objective skin test for small fiber neuropathy needed to diagnose

For more info see the full article on Yahoo

My Fibro Symptoms

How fibro has reared it's ugly head...

Every case of fibromyalgia is different. One person may experience a whole array of symptoms that another does not. So far there have been over 200 of them linked to this illness and I have a feeling there will be more in time.

I actually feel like I am what is termed a "hypochondriac" by many people because I have so many symptoms that seem totally unrelated. The other issue is that they can come and go-one day I may have debilitating pain and the next it can be quite a bit less. Itching is another that seems to come and go and I cannot relate it to any other cause-I will have problems with deep itching that lasts for hours, it will subside then come back again for days or weeks then disappear for several months, only to start again.

Fibromyalgia

An Intro-so to speak 

Can you imagine going through your day with your back on fire while you still keep going and doing and taking care of all the regular things that you have to do in a normal day? I don't mean a slight burning sensation either. I mean you actually are ON FIRE. Instead of running or dousing yourself or stop, drop and rolling,  you just keep plugging along while that fire just keeps burning on and on and on.