I make mistakes. Lots of them. Since my accident that resulted in a TBI and then fibro it means I make more than I ever did and I get so frustrated by it at times. One of the greatest mistakes is not admitting my limits-even to myself. I "forget" I am not the person that I was pre-accident/fibro and I push myself to do more, better, faster or "like I did before."
Fibro is the unseen syndrome that I have finally accepted. I am not saying I like it by any means but I have come to terms with the fact that I have it after several years. This blog will share my struggles, my victories and anything else I find of value while learning to live this life that I love.
Showing posts with label living with fibromyalgia. Show all posts
Showing posts with label living with fibromyalgia. Show all posts
Wednesday, August 19, 2015
Friday, July 24, 2015
An Essential Oil Blend For Fibromyalgia & More
Fibromyalgia can kick you from here to the end of the block and back again. Boosting serotonin is one way to help deal with pain, sleeplessness, depression, gut motility, endocrine function and a slew of other issues faced by those of us who suffer from Fibro.
Lately there is a lot of hype about essential oil usage, namely because of the marketing skills of a certain company whose name sounds a lot like Toe-Derra. I take personal issue with their tactics and even some or their recommendations. I won't get into them in any great detail here, however, I have always believed in the power of natural medicines and am happy to provide this information for a blend that works for some of my Fibro issues. I feel it is a good option for relief of some of my own issues and thought it might be appropriate for others.
Your mileage may vary of course-please do not take what information I am giving here as set in stone and certainly do not use it in place of your own physicians advice or prescription for your health.
Labels:
blend,
chronic,
chronic pain,
depression,
essential oils,
Fibro,
Fibromyalgia,
FMS,
gut,
IBS,
living with fibromyalgia,
pain,
pain management,
positive thinking,
sleep issues,
spoonie,
treatment
Wednesday, May 13, 2015
Fibromyalgia Awareness Day 2015
Yes. That is what today is-Not sure what else to say. I admit I feel like I should have a lot to say but I just don't. Maybe it just surprises me that there are people who are not aware. They must all be living under a rock or something I guess!
So here ya go-be aware-people have fibro and you need to know it! If not for your sake for the sake of those with this insidious dis-ease that impacts every facet of the lives of those that have it.
Share what you did for this oh so auspicious occasion below in the comments section and give me some ideas of what I should have come up with myself. :)
Labels:
2015,
awareness,
day,
Fibro,
Fibromyalgia,
fibromyalgia awareness,
Fibromyalgia Awareness Day,
living with fibromyalgia
Saturday, April 18, 2015
It was one of THOSE days
Today was one of THOSE days. Spring has finally sprung in NW CT. The air was dry with temps in the 70's and the sun was glorius. It was one of those top 10 days of the year; the kind of day I wait in anticipation for all winter long. I have been trying to be kind to myself the past couple of weeks. It should have been incredible.
Labels:
acceptance,
autoimmune disease,
Chronic Fatigue Syndrome,
Coping,
Fibro,
Fibromyalgia,
FMS,
happy thought,
living with fibromyalgia,
Spoon Theory,
spoonie,
spoons
Friday, March 6, 2015
Fibro Fact
Been sort of out of commission for a bit. I have a business and running that has been a struggle so I have not been keeping up here. I figure if anyone can understand that it is someone reading a Fibro blog. :)
Labels:
acceptance,
autoimmune disease,
Chronic Fatigue Syndrome,
Fibro,
Fibromyalgia,
FMS,
happy thought,
living with fibromyalgia,
Spoon Theory,
spoonie,
spoons
Thursday, January 22, 2015
Tuesday, January 13, 2015
Tuesday, January 6, 2015
How I "Caught" Fibromyalgia Part 2
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And so the "saga" continues...
Where was I?
Oh yeah! The next event that was a big tipping point.
And so the "saga" continues...
Where was I?
Oh yeah! The next event that was a big tipping point.
Labels:
anxiety,
butterfly,
child,
chronic,
Chronically Fabulous,
diagnosis,
evil,
evil butterfly,
Fibro,
Fibromyalgia,
hereditary,
heredity,
living with fibromyalgia,
molestation,
pain,
spoonie,
treatment
Saturday, December 27, 2014
How I "Caught" Fibromyalgia
How it all started...
While fibro is not something you can contract from another person or persons there are links to it being hereditary. I believe my paternal grandmother, my mother and father all suffered from it but it was at a time long before anyone ever thought to diagnose this syndrome.
My sister also had fibro. She was the first diagnosed person that I knew who suffered from it and it was that diagnosis that first brought my attention to this chronic condition. Because she had the illness I researched it, trying to find something that might help her. I recognized that I probably had a "touch of it" but did not want to admit that I was experiencing the same illness she had because it seemed to anger her that I would say such a thing. She told me I could not possibly have fibro because my symptoms were not completely the same as hers. Had she only known then what I know now, but she never will as she has passed on.
Labels:
anxiety,
butterfly,
child,
chronic,
Chronically Fabulous,
diagnosis,
evil,
evil butterfly,
Fibro,
Fibromyalgia,
hereditary,
heredity,
living with fibromyalgia,
molestation,
pain,
spoonie,
treatment
Friday, December 19, 2014
What's a Spoonie?
Spoon Theory
Spoon Theory is one that is used to explain just what it is that many people with chronic illness deal with on a daily basis. The infographic below explains it about the best and easiest way I have found. Anyone that can relate to this can call themselves a "Spoonie" in order to help others who understand the term relate to them.
I kind of use this myself but mostly with others who understand the term. To me it is about energy and my pool is kind of like a energy bank account that I spend from-if I deplete it then it's gone. If I go over my allotted spending then I have a deficit that I have to refill.
Labels:
auto-immune disease,
Chronic Fatigue Syndrome,
Fibro,
Fibromyalgia,
living with fibromyalgia,
Spoon Theory,
spoonie,
spoons
Thursday, December 18, 2014
Research finds nerve damage in patients with fibromyalgia
NEW YORK, Dec. 16, 2014 /PRNewswire
Therapath, LLC (www.therapath.com), a leader in neuropathology laboratory services, reports that new findings have revealed that patients diagnosed with fibromyalgia may also have a diagnosable small fiber neuropathy.
For more info see the full article on Yahoo
Therapath, LLC (www.therapath.com), a leader in neuropathology laboratory services, reports that new findings have revealed that patients diagnosed with fibromyalgia may also have a diagnosable small fiber neuropathy.
Objective skin test for small fiber neuropathy needed to diagnose |
For more info see the full article on Yahoo
Labels:
diagnosis,
Fibro,
Fibromyalgia,
living with fibromyalgia,
nerve,
nerves,
neuropathy,
pain management,
research,
Research finds nerve damage in patients with fibromyalgia,
small fiber neuropathy,
treatment
Wednesday, December 17, 2014
My Fibro Symptoms
How fibro has reared it's ugly head...
Every case of fibromyalgia is different. One person may experience a whole array of symptoms that another does not. So far there have been over 200 of them linked to this illness and I have a feeling there will be more in time.
I actually feel like I am what is termed a "hypochondriac" by many people because I have so many symptoms that seem totally unrelated. The other issue is that they can come and go-one day I may have debilitating pain and the next it can be quite a bit less. Itching is another that seems to come and go and I cannot relate it to any other cause-I will have problems with deep itching that lasts for hours, it will subside then come back again for days or weeks then disappear for several months, only to start again.
Every case of fibromyalgia is different. One person may experience a whole array of symptoms that another does not. So far there have been over 200 of them linked to this illness and I have a feeling there will be more in time.
I actually feel like I am what is termed a "hypochondriac" by many people because I have so many symptoms that seem totally unrelated. The other issue is that they can come and go-one day I may have debilitating pain and the next it can be quite a bit less. Itching is another that seems to come and go and I cannot relate it to any other cause-I will have problems with deep itching that lasts for hours, it will subside then come back again for days or weeks then disappear for several months, only to start again.
Friday, December 12, 2014
Fibromyalgia
Can you imagine going through your day with your back on fire while
you still keep going and doing and taking care of all the regular
things that you have to do in a normal day? I don't mean a slight
burning sensation either. I mean you actually are ON FIRE. Instead of
running or dousing yourself or stop, drop and rolling, you just keep
plugging along while that fire just keeps burning on and on and on.
Labels:
autoimmune disease,
Chronic Fatigue Syndrome,
Fibro,
Fibromyalgia,
living with fibromyalgia,
pain,
pain management,
spoonie,
spoons
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